Volume 17, Number 1 (4-2007)                   J Holist Nurs Midwifery 2007, 17(1): 23-30 | Back to browse issues page


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tahmasbi S, aein F, heravi karimuoe F. B- thalassemia children and quality of life: Does the present condition justify ‎children’s quality of life?‎. J Holist Nurs Midwifery. 2007; 17 (1) :23-30
URL: http://hnmj.gums.ac.ir/article-1-248-en.html

, TAHMAS – S ‎‏2004‏‎ @ YAHOO. CO. UK
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B- thalassemia children and quality of life: Does the present condition justify children’s quality of life?

By: Tahmasbi. S. MSN, Aein. F.Ph.D student, Karimoei. M.Ph.D student

Abstract:

Introduction: Annually, thousands of children are born with B- thalassemia major who receive continuous treatment. The goals of treatments are providing these children quality of life (QOL).

Objective: The purpose of this study is to determine the QOL of children with B-thalassemia referring to thalassemia centers from their point of view and assessing its effective factors.

Methods : In this descriptive – analytic study, the Red QOL scale and a questionnaire in 3 domains of demographic, social and treatment factors were used to interview with 34 Children with B-thalassemia major referring to selected thalassemia wards. Data were analyzed by descriptive and analytic statistics and SPSS software.

Results: The mean score of childrens Qol in physical domain was 11 ± 5.59, social domain 4.85 ± 3.56 , school practice 7.14 ± 3.72 and cummulatively QOL domains was equal to 30.29 ± 13.38. Also such factors such as availability of blood, medicine, personnels relation, school health nurse, number of hospitalization due to related problems had significant relationship with some of the childrens QOL domains.  

Conclusion: Based on study findings, the QOL condition of children with thalassemia  was satisfactory. It appears that the medical services provided to these children in centers are satisfactory and maintains the objectives.

Key Words: Thalassaemia, Quality of Life, Children

Type of Study: Research | Subject: Special
Received: 2014/08/16 | Accepted: 2014/08/16 | Published: 2014/08/16

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